Thanks Angela!!!

You are so good with Lily, and our lives are better because of your help and dedication.

Looking up!

I could have laid here all day! Lily loves to be outside with us!

A Sunny Day in Washington!

Lily loves the water!!!

Jimi Hendrix Memorial

Daddy & Lily

Daddy + Sun + Guitar = Nap

Olympic National Forest Road Trip

Lily Update

Lily is doing really well as of late. She is still feeding herself!!! Bravo!! Recently she developed a UTI and had to do 2 rounds of antibiotics, but has recovered well. Along with all of the enjoyable cognitive changes, Lily has also entered Toddlerdom! She is doing an amazing amount of screaming, screeching, etc. We actually took her to the doctor because we assumed that she must be ill, but as it turns out, she's physically well but has entered into the very normal tantrum stage! Actually, this is good! However now we're actually having to do some typical parenting! It's so easy with a disabled child to turn into a helicopter parent...always hovering and checking. Especially when daily seizures are a part of your life. We are learning, however, to give Lily more independence and she is happy (most of the time) to take it. We're adjusting ourselves to Lily's new growth and looking forward to allowing her to work through it and do a bit a playing and entertaining on her own. So, a little growth, a little freedom, a little screaming!!

Road Trip

Mom and I took a road trip around the Olympic National Forest. It was an amazing trip; in fact, I think it is the best road trip I've ever taken. We drove past Crescent Lake which was the most gorgeous aqua waters I've ever seen. We stayed the night in Forks and made Twilight jokes all night, and then headed down the Western side of the Forest, passing through the Hoh Rainforest and stopping at Beach 4 to take in the Pacific Ocean and then drove through Aberdeen and Olympia before making our way back home. We laughed and took photos and just enjoyed the spontaneity of doing whatever the road presented. This was also Daddy and Lily's first overnight alone without mommy. They had loads of fun together and had some real bonding time. I cried before bed since it was the first time in 3 1/2 years that I slept without Lily just down the hall. It was good for me, but I also had the chance to miss my sweet girl!

Catch up

We've been so busy with vacation etc. that I haven't updated! My mom came to visit and we had the BEST road trip ever through the Olympic National Forest. It was so much fun!!! Lily is on her second round of antibiotics for a UTI, but otherwise we're doing great. I will post photos and such soon!