Warm Fuzzy

Lily is still sick. Now a cold has kicked in. :( We finished the ear drops and now on antibiotic #2. I bought this electric throw, and putting it on low and wrapping it around her seems to help. She loves it so much that when I put it near her she throws herself on it and pulls it over her head--it's very sweet! Poor Lily is so fussy and miserable. I really hope she feels better soon---we all need a reprieve!!

A rough morning

Lily feels horrible. The ear infection doesn't seem better after a few days of drops, so i'm taking her back to the Dr this afternoon. Lily has a high pain tolerance, so I know when she's crying with all her might that she's in pain that it's bad.

Vampire Night

Lily was up a lot last night, and of course, she's sleeping most of the day. Her pediatrician called today and said that the UTI test did not grow any bacteria and to stop the antibiotic. The initial dip was positive for a UTI so it's hard to say what is going on there, but we don't want to give her antibiotics if they're unnecessary. So, we'll just continue the ear drops and take her back to the Dr to check her ears again. Well that's about it, I'm so exhausted.....

Double Whammy

Lily has an ear infection and a UTI. Her fever is at 100, and she feels so yucky. :( Hoping these antibiotics work fast!!

The Thinker

Lily's thinking intently! She's ready to go to her Dr. appointment; we're pooped and the house is a mess...hoping for a solution today!

Under the weather

Lily is feeling bad today. She is running a low-grade fever, and I think that her urine smells funny. I've tried to test it but have not yet been able to get a good sample. She's also tugging at her ears a bit, so I'll be calling the Dr on Monday to have her checked over. She's fussy and her little eyes have bags under them....poor little thing. She just can't get a break...always sick. :( But we are making the best of it and watching movies, snuggling, and snacking on apricots and pistachios. :)

Group Swim Classes

Today Lily did her first group swim class for special needs kids. She LOVED it! She was squealing and laughing, and she was soooo loud! I was also pleasantly surprised at how well she was kicking and using her arms to move through the water (with me holding her, of course). She also did great at holding her head out of the water when on her tummy. It was a lot of fun and something we'll be looking forward to every Saturday!

Up with Keppra

Lily's neuro upped her keppra to try and control some pretty big seizures lately. Yesterday she had 4 (3 were in a cluster and I had to give Ativan). She seems to have adjusted well to the bump so far today. She's trying so hard to talk. Today while playing with a toy puppy, she said dog (daaah to her) and later when I was touching my finger to her and saying nose she said noooooose. She started with her new speech therapist and that is going very well!! Hoping with more seizure control, we'll see even more improvement!!

Fun at the Fair!

Lily and I had a wonderful time at the fair! She loved the rainforest adventure!!!