Evicting Viruses

Lily had a cold for 3 weeks followed by a one week reprieve. And now another cold. We're headed to the doctor tomorrow just to have her checked out. She again has icky drainage, is pulling at her ears, and is essentially miserable. The thing is that Lily reverts back to being a baby during illness. She doesn't understand that the cold will eventually pass, and she doesn't understand that we can't take it away, so she essentially cries and screams due to frustration that resembles a neonate. It makes me feel just awful for her. Plus, we know that on the Afinitor it just takes so much longer for a cold to pass. I see other kids with colds and they are playing and getting their nose wiped and maybe they're a bit fussy, but not like this. Her little body is so fragile that it just wreaks havoc on her--and it brings the seizures in full force, which just adds fuel to an already unbearable fire. The best thing for us to do is try and distract her and keep her as comfortable as we can. We all also start to get a bit of cabin fever because she does not have the energy or the immune system to go anywhere, and so we will be stuck in the house for a few more weeks. Thank goodness we have Angela to help us~~taking a break from the crying and having a few hours to yourself really helps us come back to Lily with a clear mind and plenty of patience. And in another way, it's so sweet that Lily curls up in our lap and just falls hard into us and seeks our comfort. I would definitely choose for Lily not to be sick if a choice were given...I would evict the viruses! But we have to seek the positive in the present, and I really do love snuggling up with her!!!!!