We've been working for 2 weeks on getting Lily's refill on Afinitor (the med that's shrinking the tumors and helping her cognition) and hitting paperwork roadblocks. We have 12 days left. We completed all of the paperwork, done everything they asked, only to be told she was not approved. Now we'll spend all day on the phone trying to work this out and begging for her medication. We'd just pay for it, but it would be about $8,000 a month. We'll keep working--nothing is over until we decide it is.
Update: The AMAZING team at Dr. Sotero's office (specifically Makeya (sp) and Alice) has helped us so much with all of this. It looks like we will be able to get the medication through a specialty pharmacy for a low cost. Will let you know when we find out for sure! I'm panicking less now. :)
Update 2: Finally we found out that the Afinitor will ship and be here tomorrow, and our copay is zero. Whew! One battle down...on to the next.
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