So tomorrow morning is Lily's surgery for her 4th set of ear tubes and adenoidectomy. The hope is that it will reduce the fluid in her ears and her monthly ear infections. It's really hard to want to do it when we have better seizure control (0-2 mild ones a day). Also, her development is pretty good right now as well. However, she is still taking 2 short naps a day and tires easily, probably a result of all the recent increases in seizure meds and afinitor.
I realize that this is a fairly minor surgery, and we've certainly been through more risky and more difficult procedures, but I'm still so nervous. My tummy is all in knots and I'm trying to keep myself occupied today. Probably my biggest concerns post-surgery are getting her meds down if she doesn't want to swallow and pain management. I've heard that it's actually a few days after surgery, when the scab forms, that it gets rough...and that's when the fever spikes. Eeeek.
On a good note, today in school she picked up a marker to scribble, and this afternoon she did 5 little bunny hops on her hands and knees to move forward. YAY!!!!
I'll update as soon as I can after the surgery. :)
The entire Brewster family is in our thoughts! May the surgery be quick and painless for everyone. Love from Cincinnati!
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