Seizures on the Increase

Lily's seizures have been at 0-3 a day with most days being 0-2, but now the seizures have increased to 2-3 everyday and they seem a little more intense. She hasn't been sleeping all that great, so we're wondering if she has again built some tolerance to the melatonin. So for 3 days we backed the melatonin down to 3mgs and tonight we'll bump it to 6mgs; hopefully this will give her a good night sleep and lower the seizures. If they continue, it's hard to want to increase her seizure medications much when she's cognitively doing so well, and we know that titrating the meds sometimes results in cognitive losses. It's a fragile game of give and take, and it's always a balance of seizures and development. Regardless, we'll give the melatonin trick a try, and if we don't see a decrease we'll let her neuro team know and make a decision on our next move. I find it difficult to accept that seizures everyday is the norm. It still hurts to see her have seizures, still breaks my heart daily, still scares me, still want them gone, but until that day comes, we have to face them, and we have to be smart about how to fight them. No seizures and No cognitive progress is not an option either.