We owe, we owe, to three more appointments we go

Lily has three Dr appointments this week...about the normal number. We'll go in on Tuesday for a check up with her pediatrician, and then on Wednesday Lily has a renal ultrasound followed by an appointment with the Nephrologist (at a different hospital). We'll be all over Seattle on Wednesday! Lily's seizures are a bit reduced in number, so hopefully getting better sleep has provided some improvement. Lately we're really focused on trying to pay hospital bills and get Lily a wheelchair. One thing that really adds to the difficulty of having a medically complex child is the enormous amount of bills. We owe so much money, which is difficult but if you can just set up payments it's manageable, but one of the hospitals Lily goes to requires that you pay them off in a year, so if we rack up a $12,000 bill in a year (and usually it is more than this), they want $1000 a month. Eeeek. So we also spend a lot of time trying to negotiate payments or in simpler terms...we beg. Also, Lily needs a wheelchair and coming up with a couple thousand dollars that we will owe after insurance is tough. We've been trying to come up with ideas on how to get her one. It's hard to watch families that qualify for state insurance get every service and piece of equipment that their child needs. Not that I don't want them to get everything they need, but I wish that Lily could also have everything she needs to help her in life as well. She needs a bath chair (baths are getting exceedingly difficult), a wheelchair, speech therapy, and other things. We're not rich people, but we make over the amount to get any help, so it's all on us. But we will find a way because our love for her exceeds all the bills combined.