Swim Therapy, Orthopedic Shoes & Genetic Testing

This is a busy, busy week. Besides the fact that she spent Sunday night in the ER, Lily has home school 2 times, physical therapy, orthopedic shoes casting, genetic testing, and horseback riding this week! Better busy than bored, I suppose! We're excited for Lily to start swimming again! She loves the pool and does so well in the water. The orthopedic shoes should help with Lily's toe pointing and keep her feet in a more stable position. The blood testing is to see if she has a genetic proponent to the adverse reaction to sodium channel blockers...along with a few other things.  She is resting a lot today. I think the emergency room wore her out...as it did me. I could do an entire blog post on the inappropriate things hospital staff say to moms of disabled children, but I have a life to carry on with, so I'll save it for another time and place. It'll probably come out when Alicia is here for a visit!! She understands crazy nurses like only a NICU nurse can!!!