Lily Wants to Talk

Lily can now say two words: uh-huh and yeah.  She also uses them purposefully.  As in Lily are you tired? yeah.  At 3 she doesn't really talk, but we know that she understands a lot. In fact, if you ask Lily to use her hand, she will. Or if you tell her that she's pretty, she will smile and turn her head away shyly.  It really shows us that she's understanding!! She's also still using the iPad to communicate and it has really allowed us to know what she wants and needs.  She is also babbling so much better (dadada and mamama and a bit of gabadama (that's a step toward talking!)...even though over the past few days she has been having about 3 seizures a day.  This is probably due to the drop in zonegran--she was too high and now we may need to raise her keppra or clobazam.  We just keep reminding ourselves that moving forward slowly is still moving forward!