Nephrology

Lily had a new nephrology appointment today.  It appears that she may have nephrocalcinosis (too much calcium in her kidneys) that could lead to kidney stones and other issues.  She is on a citrate medication to try and control this, but more testing will need to be done to understand exactly what is going on.  So today she had a catheter to double check for a UTI (it was clear) and a long a grueling blood draw (testing med levels and many other things).  She cried through most of the appointment.  It was really a difficult day.  By the time we got home, Lily was so exhausted (as were we).  The doctor has recommended that we have another ultrasound in July to check her kidneys.  The white spots on her kidneys could be kidney stones or they could be cysts associated with tuberous sclerosis.  We will just have to wait and see.