Picnics Galore

Lily's seizures have decreased back down to 0-1 a day. There are always those little questionables, and during an eeg, they are sometimes little seizures and sometimes not, so I don't count them because if I did, we could easily overmedicate~and even those are very few. It just goes to show how having an infection or the lack of sleep can really increase the seizures.

Yesterday Lily took a 3 hour nap--that's probably the second time in her life she's done that, so I did utilized one of the urine tests strips they gave me at the urologist's office. The nitrites were high, but she did not have an elevated white blood cell count. I'm not sure if the nitrites being high on their own equates to a UTI, so I'll call the Dr on Monday to find out. It's really great to be able to check for a UTI rather than waiting until she's miserable and her pee stinks....by then, we're so far gone that it becomes difficult to manage. I like this plan and think it will really help Lily!!!

She's also been tossing around some consonants lately, dada is her favorite. I know she's frustrated not being able to walk and talk, but this is one of those parts of parenting where you have to let her fight through it. Eventually she will answer uh-huh or roll to what she wants. Bringing her the toy she wants doesn't keep the motivation up. Then once she rolls to a toy, I reward her by moving others closer. Baby steps. :) She is also such a nature girl. We've been having a picnic lunch every day outside, and her mood changes so much when she's outdoors. She also prefers the earthy ground to the blanket and likes to lay in the grass and run her fingers through the blades. It's great for me because I can lay on the blanket and read a book while she has lunch and soaks in the sunshine. We gotta get it before the rain sets in...I may get a tent! ha ha!