Seizures suck. Lily had a nasty seizure yesterday, and we suspect she may be having some at night as well. We had taken Lily out for some fun and as soon as we got there, she had this big seizure. They called an ambulance (I think we scared the crap out of them). She was fine afterwards and is doing well today. We will get blood work today and check her med levels and then see her awesome neuro Dr and team soon. Plus they will decide when we see the Dr if we need to do an video eeg.
On a better note, Lily has been trying so hard to talk, she's been holding her arms out to be picked up, she's interacting more with her toys, and I see less autistic features. Afinitor is really making a great difference cognitively. I just hope that we really start to see some more seizure improvement soon.
I love to hear Afinitor is helping! I want her to reach up to me. :) I miss her so much. I don't like these big seizures...well, any of them but especially the big, scary ones. You're right. Seizures suck.
ReplyDelete