A Better Day

Lily seems to be feeling a little bit better today. She is eating a little bit and I'm even getting a few laughs again. She is still having a lot of diarrhea and is not putting out as many wet diapers as I would like, so I keep feeding her peanut butter so she'll drink. :) I got up and got a lot of tasks done that were weighing on me, and I feel so much better!! Seizures slowing down and so the world is spinning at a much reduced pace!! I'm doing interviews this week for a new mommy's helper. We've had Angela helping us for over a year, but her husband is military and has to transfer. We'll be sad to see her go. I'm also trying to confirm Lily's MRI~~will probably be January 25th, but I need to confirm. I really want to see a reduction in the tumors. We're also waiting on blood levels...Lily has had a big growth spurt and she has also stopped trying to crawl (she usually stops advancing when she's sick), but I'm wondering if Afinitor needs to go up? I'll update as I find out.